CHARLOTTE, Mich — More than 140 people gathered at Country Mill Farms in Charlotte for the Cure Clark 5K to raise awareness and funds for Sanfilippo syndrome.
- The Cure Clark 5K raised funds for research into Sanfilippo syndrome, a rare genetic disorder.
- Clark Willmore was diagnosed with Sanfilippo syndrome in December 2024.
- The genetic disorder is often described as similar to Alzheimer's and dementia, but affects children.
The event supported Clark Willmore, who was diagnosed with Sanfilippo syndrome in December 2024.
WATCH: Charlotte community rallies around local family at Cure Clark 5K fundraiser
"Thank you everyone for being here and today we run or walk for Clark and for a cure," said Cloey Willmore.
According to the Cure Sanfilippo Foundation website, the genetic disorder is like Alzheimer's and dementia, but in children.
Clark's parents, Japheth and Cloey Willmore, explained how vital community support is in their fight against Sanfilippo.
"Clark is in a clinical trial and those are pretty much funded by kind of grassroots efforts because it is rare and there's not a lot of funding for research into San Filippo so these events allow clinical trials to be put on so hopefully find a treatment or a cure," Japheth Willmore said.
Currently, there is no FDA approved treatment or cure for Sanfilippo syndrome, but research is ongoing.
MORE INFORMATION/LINK TO DONATE
This story was reported on-air by a journalist and has been converted to this platform with the assistance of AI. Our editorial team verifies all reporting on all platforms for fairness and accuracy.
Want more FOX 47 News? Here's how you download our Roku app
You can also see the latest news from across our mid-Michigan neighborhoods by liking us on Facebook or following us on X.
